World Arthritis Day

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Today is World Arthritis Day, a day when the millions of sufferers of the many forms of arthritis reach out to the world to educate and advocate. One organisation, the National Rheumatoid Arthritis Society, based in the UK, has started a new campaign called ‘remission mission’ to show how the right care can make a huge difference to the quality of life of someone with Rheumatoid Arthritis.

The remission mission’s goal is simple, to educate the general public and to encourage medical professionals as to what remission means for patients: “From something as simple as being able to brush your teeth, do the gardening or work full time, the word remission truly means different things to each of the 690,000 people in the UK living with rheumatoid arthritis (RA), as well as their family and friends who see them coping with the disease daily.” They have started a photo wall where patients and medical professionals have posted about what remission means to them.

For more information see the NRAS Remission Mission page

National Poetry Day

Today is National Poetry Day. Here is a famous one that reflects how I feel right now

Solitude

By Ella Wheeler Wilcox

Laugh, and the world laughs with you;
Weep, and you weep alone;
For the sad old earth must borrow its mirth,
But has trouble enough of its own.
Sing, and the hills will answer;
Sigh, it is lost on the air;
The echoes bound to a joyful sound,
But shrink from voicing care.

Rejoice, and men will seek you;
Grieve, and they turn and go;
They want full measure of all your pleasure,
But they do not need your woe.
Be glad, and your friends are many;
Be sad, and you lose them all,
There are none to decline your nectared wine,
But alone you must drink life’s gall.

Feast, and your halls are crowded;
Fast, and the world goes by.
Succeed and give, and it helps you live,
But no man can help you die.
There is room in the halls of pleasure
For a large and lordly train,
But one by one we must all file on
Through the narrow aisles of pain.

Josefina Manresa (1916 – 1987)

amandapayne2013:

Brave woman.

Originally posted on janecronin:

JosefinaManresa

Josefina Manresa was the wife of the famous Orihuela poet Miguel Hernández and the inspiration for some of the most beautiful poetry written in the Spanish language.  She was born in Jaén and her family moved to Orihuela in 1927 where she had one year of elementary education and went to work at the age of 13.  She met Miguel Hernandez in 1933 and after a timid, formal courtship the couple married four years later and moved to Jaén where Miguel was stationed at the beginning of the civil war.  Shortly afterwards Josefina’s father was killed and her mother died of grief, so she had to return alone to Cox, whilst pregnant with her first child, to care for the family.  Sadly her son, Manuel Ramón died before reaching his first birthday.  The couple had a second son, Manuel Miguel born in 1939 who lived until 1984.

At the end…

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Glasgow School of Art in flames

It’s a very sad day today in Glasgow as the iconic Glasgow School of Art, designed by Charles Rennie Mackintosh is burning in a huge fire believed to have started when a projector exploded in the basement and the resulting spark set alight some foam being used for an installation. Fire has ripped through the building, destroying work by students who were preparing for their end of year art show. It is believed that the library and archive have also been destroyed.

Glasgow School of Art

Glasgow School of Art

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Many Britons feel uncomfortable around disabled people: Let’s End the Awkward

amandapayne2013:

Interesting article. Here’s a thought. Why is it that people have no problem going up to a pregnant woman they don’t even know and ooh and aah about the forthcoming baby and sometimes go as fas as to pat her on the stomach yet those same people would cross the street to avoid someone in a wheelchair?

Originally posted on Metro:

Alex Brooker, centre, and Julie Fernandez, right, in one of the new End the Awkward adverts (Picture: Scope)

Alex Brooker, centre, and Julie Fernandez, right, in one of the new End the Awkward adverts (Picture: Scope)

In Britain, we’re used to feeling awkward around each other. It’s practically a national sport. But that doesn’t mean we shouldn’t try to do something about it.

The awkwardness of others is something most disabled people have to put up with on a daily basis. Unfortunately, talking to a wheelchair user still has the capacity to bamboozle those who aren’t in one, turning them into nervy wrecks who are so scared of not doing the wrong thing that this is precisely what happens.

This scenario is just one of the examples in a new TV advertising campaign launched today by British disability charity Scope. In the advert, one of three in the charity’s End the Awkward campaign, a wheelchair user played by British actress Julie Fernandez, known for her roles in…

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